Thursday, February 25, 2010

Doctors, Stomach Bugs, Ribbon Eels, & Taxidermy

Well today was eventful and frankly, I'm tired. My body keeps reminding me that even though it seems like I feel OK, it's still in the process of catching up. My friend Aden once told me, "Your body is your BEST teacher." I've come to understand how little I have embraced this idea through my life. I worked my body tirelessly, expecting always to give me one more go, another burst of energy to do just ONE MORE THING. Unfortunately, my frame, my skin, my container carried so much that I was continuously ignoring. So, I guess it's time to reconcile, reconsider, reconnect, rebuild, recover.

I first visited the doctor for my post-op appointment. According to the dept. of pathology (I imagine they're in a cold, airy, dank office in the basement), my growths do NOT appear to be
papillomas (or warts) but rather nodules or nodes. Somehow, I actually misused my voice. It's so hard to believe. Everyone who just said 'yeah right' or is laughing is certainly entitled here. I OVER"DO" just about everything and this is a blog about how that's changing. Anyhoo--BETTER NEWS THAN EXPECTED. It does not appear at this point, that I will need recurrent surgeries because they will not grow back (as long as I use my voice correctly). I will still have to have my second surgery. Now, the terrible
part of doctor's visit is the devilish wand she uses to 'scope' my throat. The device itself is almost as long as my arm. So, I had the opportunity to work REPEATEDLY on my gag reflex. (Note: this is not fun in case you haven't already deduced that) AND for those of you who do not know, this girl's got a vomiting phobia. So, that was interesting. Now, what is requested of you as the patient is certainly worthy of American Idol--Rejected Idols Episode. With this freakin' tube in your mouth, your doc holds your tongue and asks you to say and hold 'E.' If you think that this is at all do-able, go 'head, try it. See? It's hard enough to say 'E' with your mouth open, let alone someone holding your tongue for those of you who didn't actually try it just now and still do not believe me. Oh, wait there's more. She asks me to change my pitch. I can't do it. I keep on gagging, AND she keeps on asking me. Wow. Not only could I not do it, I didn't feel like it. She finally gave up and told me that she thought she had enough footage to see my chords. THANK YOU.

I considered the completion of my doctor's visit quite the achievement. If it were the Throat Olympics, I would have won a medal...no, I would have been disqualified, but at least I made the Olympics. I decided to celebrate with my mom at my favorite SF pizzeria. The Clement spot is kitschy and fun. Damn, their staff is always in a great mood and it NEVER annoys me! Anyway, the lunch special with their house salad and slice of mushroom hit the spot and we're off. My mom and I head down Clement, and hit none other than Green Apple Books. You already know my infatuation with bookstores and well, my mom's relationship with them is more developed, longer standing, and well, a full-fledged romance. We proceed to peruse with great delight, practically salivating amongst the rows of bindings and pages for A LONG TIME. It didn't really matter though. We were completely content. War did not exist.
Upon inquiring at the counter about some titles, we discover that there is another building housing fiction and music. Another building, people! This is bad. Not to mention that we already were planning to go to the Academy of the Sciences, I've had intestinal "trouble"/stoppage due to pain medication, and it's already 2pm. The Academy closes at 5pm. Meanwhile fruit, senna, fiber, and my mom's second hand cigarette smoke gave way to a fury in my tummy that had to be tended to... immediately. Ugh, public restrooms. A crucial stop at a coffee shop found me eating tiramisu, sipping on a green/white tea, and my poor mom in the restroom with an attack of a stomach bug. Were my mom and I going to make it to the Academy today? Oh, stay tuned folks. We make it there. We stumbled through the grass like we had been wandering through a desert for 3 days without water. We were probably both just as dehydrated at least. Between the two of us, we made quite the pair. Not to mention my mom picked out her Sunday Best for our day...her beautiful, bright purple "I'm addicted to Luigetta's salad dressing t-shirt."

We arrive at the gates, my mom as white as snow, me with an over-sized bag from the Salvation Army full of three $1.50 pillows that I just had to have TODAY. I didn't care. I was going to make it to the Academy TODAY. The place is amazing. Of course, it's like an elementary school playground during the day but I was determined to get through it. This day was becoming more like an obstacle course than a day of leisure. After boycotting the planetarium for the day as an homage to my sickly, nauseous mother we head to the aquarium. She had to make a b-line for the bathroom in the middle of the dive show, but I make a few three year old friends. I love kids. At one point, I thought to myself, I'm actually paying to watch the people. Oh well. Besides, you couldn't really understand the supposedly interactive, microphoned diver, and the girl outside the tank from the Academy kept on saying "uh." Ahhh, Mr. Miller from my 10th grade Public Speaking class would have docked her a few points.

I ended up parking my mama in a cold, dark area of the aquarium where I believe she took a nap. I allowed myself to get lost in the wonder that I remember from field trips, afternoons with family, and anyone who was kind enough to take me on an adventure. There were big people, little people, dads cradling babies, and couples sharing in learning. The exhibits were well, exhibits. Nonetheless, a few really intrigued me. The flashlight fish, the stonefish, the contents of a tiger shark's stomach (spam can, 2 barbie dolls, a shoe, a tortoise shell, various bottles, a license plate), waxy monkey frogs, and weedy/leafy seadragons. Did you know that the ribbon eel begins as a male indicated by their blue color, then eventually becomes female and bright yellow?

My mom moved upstairs to a bench beside the first aid station when I proceeded on my tour. Conveniently, she never utilized their services. Like mother, like daughter. I went through the rain forest and winced when I hesitantly peered into the snake exhibits. I went to the living roof, walked through the ages, and Africa. I was so glad when I went to fetch my mom a drink that they only had tap water instead of a cooler of bottled crap. On the way out, I reminded my mom of the penguins. We went and made friends with one.

We staggered to the street and hailed a cab. My mom waited for me to give directions to the cabbie, and then I looked at her with raised eyebrows. We're still working on the not-talking-so-people-have-to-talk-for-me-and-know-what-I-would-say-thing. The reggae lulled us to sleep as we headed home. I enter my apartment to find yet another beautiful bouquet of flowers and several cards. People can be so wonderful, and it feels even better to have to the time and energy to really appreciate it and take it in. Then I think to myself, I wouldn't want to be in any other place, in any other city, with any other people, experiencing this recovery. Oh, and I kinda want to be a taxidermist.



Love, E.B.

Sunday, February 21, 2010

My introduction to recovery

So, I'm imagining that this (see photo to lower right) is what my doc meant by 'anterior.' My back, from the base of my head down to my butt feels horrible. Arnica...thank you TPI friends...is amazing but only takes the edge off for a minute. Per my doc, I did also speak at a very low decibel yesterday for about 40 seconds. My throat hurts today though, so I'm going to abstain from speaking. I am allowed to speak at 5 minute intervals per hour at a very low decibel.


I've been thinking a lot about books and bookstores. I wish I could live in them. I am having some difficulty with just resting. As most of you know if you know me at all, I work ALL THE TIME. I keep on reminding myself the importance of recovery and rest. Unfortunately, they don't come easy for me. A beautiful surprise this morning was the sound of rain on my window panes. If there is anything that really makes me smile, giggle, and enjoy my time underneath my covers, it's that pitter-patter. All-you-can-eat-sushi tonight just a block away from my house. I'm going to try to get my mom on the sushi train. Of course, that could be more difficult than my recovery.--E.B.

Saturday, February 20, 2010

Un-doing the voice

I'm heading into a second day with the inability to utilize my voice due to vocal chord surgery (i.e. laryngeal lesion removal--yuck). In a day and a half, it's already been quite a ride. However according to friends and family, I still have my personality. White boards and gesticulation come in handy when expressing yourself. They bruised my tongue and inner mouth because my doctor explained that I was "anterior." What the hell does that mean? Anyway, the bump/bruise on my tongue was the size of a walnut yesterday, and made it difficult to eat. My throat and neck are very sore. They did the right vocal chord, so it's primarily painful on that side.


Courtesy, Deborah Leavitt, Megaphone


Upon arrival at the hospital, they gave me an Advanced Directive (kind of like a living will). I was already extremely nervous and just wanted to start the procedure. She explained that the paperwork to process the AD would be 6 weeks. I questioned why I did not get this sooner. She was not sure, then questioned if I had one at home. I'm thinking to myself, "Perhaps. Underneath my bed, mixed in with everything else that I don't know what to do with." I then said, "Well, I guess this won't really help if something happens today?!" She responded, "Yes ma'am. That's correct." Oh the dehumanizing major hospital experience...

I hope that you'll join me on this journey and witness the unraveling of all this means to me, my life, and my career. Given my schedule and interesting DAILY journeys (particularly on public transportation), recent events, and the wormholes of my mind, I should be able to keep you, or at least myself, entertained along the way.--E.B.